Saturday, December 26, 2020
A Legacy of Love.
Monday, December 14, 2020
Pilgrimage.
"And that's the way I connected to God, That's how He speaks to me. For some reason storms give me peace. Because I know He's in charge of it. So in the same way He's in charge of my natural storm, He's in charge of my spiritual storms, My emotional storms. The human condition. When I am broken, when I want to give up, I know He's there." Pastor John Gray
Sunday, December 6, 2020
Sun burns in December
One summer many moons ago I got a really bad sunburn. The kind of sunburn that you can hardly move, you feel like your skin is cracking. Clothes hurt, you can't sleep at night, even a shower feels like you are getting pelted with sand. Every day you expect it to get better only to have new symptoms. Your skin is so sensitive that it makes everything you do a struggle.
Sunday, November 29, 2020
What if....
What if on the days I didn't feel like it I stayed on the couch rather than at least going for a walk?
- Keep doing the work
- You can't cheat growth
- Never give up
- Find gratitude
Monday, November 23, 2020
Get a grip
"Smile" my cheesy talent |
I am really trying here. I find it best when everything seems so chaotic to just back deeper inside myself. I have gotten so afraid of relationships, conversations, interactions that I think it is best to communicate as little as possible, although that even gets you in trouble these days.
Sunday, November 15, 2020
Out of Sight
I wear other clothes other than running, my new skirt from Poshmark! |
Last Tuesday, I worked and headed to church for our recovery program that I have done for the last 15 years. The problem with this little routine was me.
Addiction is a passion for me. Growing up in the chaos of addiction didn't make me bitter rather the battle made me more compassionate for the disease. The problem was not with my passion rather my pain from surgery less than a week prior.
I touched up my make up, pulled up my boot straps and headed to Waterford to love on those struggling worse than even I was.
Covid has really interrupted the recovery program at the River and many recovery places all over.
After Roger spoke, we all left the auditorium to go to our individual meetings.
Every step hurt to walk from the auditorium to downstairs where my room was. My thighs and hips were dark from angry bruises. I winced every time I had to get up or sit down. The pain took my breath away and fatigue had now set in as the clock approached 8pm.
I knew I had to be gentle to my recovering body today. So I headed to the gym. I wasn't sore from running but I didn't want to overdo it and possibly do damage. So I masked up, road the bike, rowed, walked and did some light weights.
11 days later...Ouch! |
”Pain nourishes courage. You can’t be brave if you’ve only had wonderful things happen to you.” – Mary Tyler Moore
Sunday, November 8, 2020
She saw Love not my ugly
ALL DONE! Girdled up and going home. |
I have only had my breast surgeries at Beaumont Troy. And truth be told I have had so many surgeries there I actually know the staff.
Monday, November 2, 2020
BIG B's, Exchange
"Work with what you've got not with what you hoped for." Hotel Artemis |
Do you think about what used to be? What once was? Even finding yourself chasing your yesterdays, trying so hard to catch up and trying even harder to just match up but not willing to give up.
That's me.
This is a great picture of how "little" I care about how BIG my breast can be. This was taken 3 months ago. I literally went so small that, that is why I have to have another surgery. |
Sorry for the undies shot, its not perverse it is clinical. keep it that way! |
Thursday, October 29, 2020
Cancer Sucks..a couple things
“Toughness is in the soul and spirit, not in muscles.” —Alex Karras
When I was first diagnosed with TNBC last April it was like having an out of body experience for weeks. As soon as you are diagnosed you calendar fill up with multiple dr appointments, tests, scans, blood draws and the list goes on. You hardly have a chance to think. Then when you have a few minutes to collect all the information you feel like your in a very bad nightmare. Only there is no waking up from it.
- ER positive: (Estrogen receptor positive)
- PR positive: (Progesterone receptor positive)
Breast cancer cells grow by responding to certain hormones.
- HER2: another form or breast cancer is where the cells have to much protein.
- TNBC: Estrogen receptor negative, progesterone receptor negative
- MTNBC: the same as TNBC only it is hard to treat b/c there are no known proteins for cancer drugs to target.
- There are other types of breast cancer but these are a few.
- A new lump or mass
- swelling
- skin irritation or dimpling
- breast or nipple pain
- nipple retraction
- redness/ thickening of the nipple/breast skin
About 4 percent of breast cancers occur in women younger than 40.
Breast cancer survival depends on a person’s diagnosis and treatment.
276,480 new cases of invasive breast cancer (This includes new cases of primary breast cancer, but not recurrences of original breast cancers.) 2020
- 42,170 breast cancer deaths 2020
Five-year survival rates tend to be lower for triple-negative breast cancer (TNBC) than for other forms of breast cancer. I HATE THIS STAT.
TNBC is also more likely than some other types of breast cancer to return after it’s been treated, especially in the first few years after treatment. This is why I had a mastectomy
- DO not do it alone. Isolation leads to depression and having cancer is depressing. Do not be ashamed, reach out for support.
- Two ears are better than one. Always have someone with you to help "HEAR" things better at your Dr appointment. . many times Andy and I "Heard" different things.
- STAY ACTIVE. You have to stay strong. Chemo breaks your body down, the stronger you are the better you recover. You don't have to go to the gym, walking alone speaks volumes to your body. Doing a little is more than doing nothing. Get a partner to hold you accountable, I had several.
- WATER WATER WATER. You have to flush that poison out of your system. You can not let your body get dehydrated. This was a major failure of mine.
- PROTEIN, very important for cellular recovery. I wish I did better at this. It is so hard to intentionally eat extra protein when you are always nauseas.
- Keep your faith. It is so easy to cry "WHY?". You wonder WHY God did this to you. HE didn't. We live in a broken world. God doesn't give cancer. Keep your faith, your hope, this really helps you recover better. being sad, depressed or angry is NOT good for your healing.
- Accept help. People want to help you. LET THEM. Cancer takes a lot from you, your routine is going to change, you can't do what you used to. It is OK to take care of yourself.
- PUT your make-up on every day. When I didn't wear make up I found myself fighting emotions. It is so hard to look at yourself when you don't recognize yourself. A little lipstick goes a long way.
- Do not let cancer allow you to behave badly. I didn't want cancer to be an excuse to behave badly. I wanted to keep trying to be the best version of me I could.
- Be confident. Own it. Stay strong minded. Put that smile on and live the best you can.
Monday, October 26, 2020
Dream on. The 3 B's.
I make the joke all the time, "..it's crazy how little my boobies are and how much attention they are getting."
- Why are my eyes so bad? Should I make an appointment? Will my eyesight continue to decline?
- How long does it take for my speech to get better? I can't form sentences very well.
- Are there any supplements I can take to help my body as I continue to recover?
- Why am I bruising so bad?
- What are these large bruises from? They are the size of grapefruits.
- What is the percentage I may have my cancer return?
- What about Pancreatic cancer? That is part of my BRCHA mutation?
- How can I get extra screening for Pancreatic cancer?
- What about my boys, how can we get them genetic tested?
Tuesday, October 20, 2020
Bear Lake Ultra: BIB #150!
Photo credit Kris T |
Our packet pick up, so personal, Robs mom made the masks |
Bear Lake Ultra
Rob, the race director had less than 90 runners participating in his 3 mile loop. This was the 3rd year. You run as long as you can. There is only one aid station, where the start/finish is. You can have crew and tents at the start/finish line to support you. You must yell your bib number every loop when you come in and before you go back out again.
Photo credit Kris T |
Antonio brought his Theragun to help our piriformis. |
"Andy take my picture, I did it, I ran my marathon!"
Photo credit Kris T |
Running in loops allows your mind to get distracted. If your in a bad mental place it can make it worse, but if you stay in a land of butterflies and rainbows it keeps you hype. I was so hype. I would shout every time I came into the aid station, "ONE, FIVE, OOOOOH!" Then the aid station would cheer me in. I hit the 50K mark in what seemed like a breath. Andy asked if I was going to keep going. I tried not to cry, I felt myself getting choked up, "Andy, I don't understand it, why do I feel so good? This is crazy, I know what pain feels like, and I don't have any..."